Sjogren’s Syndrome

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Tuesday, April 13th, 2010

Living Healthy, Without Gluten and Dairy– Part II By Sandi Star, CCN

In Part I, you might remember the long list of symptoms associated with gluten intolerance. I also mentioned, after eliminating gluten (dairy and soy which I’ll talk about at another time) I was able to eliminate my chronic conditions such as migraines and Sjögren’s Syndrome. The key is to eliminate inflammation which is the cause of 80% if not all of disease. It’s important to understand the levels of intolerance. Next month I’ll discuss how to start a gluten free lifestyle and feel empowered by giving steps and tips.

Why the problem with gluten now? A lot has changed in the way we harvest food compared to 50 years ago. Some of the seed companies began engineering wheat kernels that could be more easily ground and produce fluffier flour to make the soft, delicious white bread for example had to have greater yields; it made more money for the farmer and increased sales.

Gluten is a composite of the proteins gliadin and glutenin. These exist, conjoined with starch, in the endosperms of some grass-related grains, notably wheat, rye, and barley.

Understanding what happens in the body and some of the symptoms will help millions of people who go undiagnosed. Celiac is the most common genetic disease of mankind (yet for every person diagnosed, 140 will go undiagnosed).

Levels of Intolerance A wheat allergy is the body’s abnormal autoimmune response to a certain protein component of wheat; it’s exhibited by a severe sudden onset allergic reaction. Usual symptoms are immediate coughing, asthma, breathing difficulties, and/or projectile vomiting. It can cause life-threatening responses in allergic people. A true Wheat allergy affects less than 1/2 % of population.

Intolerance’s are much more common than true food allergies but are harder to diagnose. Food intolerance is an adverse reaction to food that does not involve the body’s immune system. Generally food intolerance is an inability to properly digest certain foods. In some cases food passes right through the body before digestion is complete.

Leaky Gut is an increase in permeability of the intestinal mucosa to luminal macromolecules, antigens, and toxins associated with inflammatory degenerative and/ or atrophic mucosa or lining. Put more simply, large spaces develop between the cells of the gut wall allowing bacteria, toxins and food to leak into the bloodstream. Leaky Gut Syndrome has also been linked with many conditions, such as: Celiac Disease, Multiple Sclerosis, Fibromyalgia, Autism, Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Eczema, Dermatitis, and Ulcerative Colitis.

Celiac disease is an autoimmune disease caused by an inappropriate immune response to dietary proteins found in wheat, rye, and barley (gluten and gliadin). This response leads to inflammation of the small intestine and to damage and destruction of the villi that line the intestinal wall. These villi are projections (small folds) that increase the surface area of the intestine and allow nutrients, vitamins, minerals, fluids, and electrolytes to be absorbed into the body. When the villi are destroyed, the body is much less capable of absorbing food and begins to develop symptoms associated with malnutrition and malabsorption. When the body is exposed to the gluten and gliadin proteins, it forms antibodies that recognize and act against not only the grain proteins, but also against constituents of the intestinal villi. As long as the patient continues to be exposed to the proteins, he will continue to produce these autoantibodies. Celiac disease is found throughout the world but is most prevalent in those of European descent. It can affect anyone at any age and is more common in women. It is thought to be an inherited tendency that is triggered by an environmental, emotional, or physical event – although the exact mechanism is not fully understood.

According to the National Digestive Diseases Information Clearinghouse, about 5 to 15% of close family members of a celiac disease patient will also have the condition.

One of the questions I have is if someone gets a negative test for celiac should they still go gluten free. My answer is yes. If you are experiencing any of the symptoms you are more than likely gluten intolerant. Most of the population fits in that category including me. I recommend doing the 45 – 60 day challenge. Try going gluten free and pay attention to your health. If you see changes and feel better you are better off gluten free. You just have to make sure you eat a healthy gluten free diet.

Symptoms There are literally dozens, if not hundreds, of symptoms of gluten intolerance. It all comes down to inflammation in the body! Many people believe the most common symptoms are gastrointestinal in nature – yet the majority of people with gluten intolerance (and celiac disease) have extraintestinal symptoms.

The most common symptoms of celiac disease include:

• Fatigue

• Addison’s disease (hormonal disorder)

• Gastrointestinal distress (gas, bloating, diarrhea, constipation, vomiting, reflux)

• Headaches (including migraines)

• Infertility

• Mouth sores

• Weight loss/gain

• Inability to concentrate

• Moodiness/depression

• Amenorrhea/delayed menarche (menstrual cycles)

• Bone/joint/muscle pain

• Dental enamel hypoplasia (dental enamel defect)

• Short stature

• Seizures

• Tingling numbness in the legs

The “cure” is a life long gluten free diet.

Next month I’ll discuss some steps to take in making the transition.

 

About the author: Sandi Star, CCN Sandi is the founder of Karmic Health, specializing in nutrition related to disease where a gluten and casein (dairy) free lifestyle is crucial; working with celiac, autism and all auto immune disorders. Sandi graduated from The Natural Healing Institute with a degree in Clinical Nutrition and is continuing her studies in Clinical Herbology. She has hands on understanding of many health issues and has dedicated her life in helping others reach their optimal health.

 

For more information related to this article please visit www.karmic-health.com or contact Sandi Star at 760.685.3154

© Copyright Karmic Health 2010

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Monday, March 8th, 2010

Living Gluten Free – Right to Heal – Part I Sandi Star, CCN

I would like to introduce a wonderful woman with a wonderful purpose. Here is Sandi Star’s incredible gluten-free story which has led her to a healthy vibrant life. She is now helping others daily. Also learn about Sjögren’s Syndrome (autoimmune disease). Sjögren’s is one of the symptoms of Celiac disease which she will,  share with you as well. Read her first story with more Parts ( chapters) to come which Sandi will share every 2nd of the month.


After struggling for over 40 years with chronic migraines, IBS, Muscle and joint pain, fatigue, brain fog, asthma and a slew of other ailments and frustrations I decided to take a closer look at the cause rather than obsessing on the symptoms. I was tired of relying on doctors to give me answers and tired of the medications that only gave me side affects and little relief.

I had been committed to health and fitness for over 20 years, losing close to 50 pounds and 5 dress sizes, however I still had all the chronic conditions that played havoc in my life. I realized there was a key element missing and soon found out it was my reaction to gluten and dairy. I didn’t know enough about food intolerance or allergies or at least put the two together. I never believed food could have such a serious impact on overall health let alone be the direct cause of my diseases. With what I know today I’m surprised my doctor didn’t put the connection together when he diagnosed me with Sjögren’s Syndrome (autoimmune disease). Sjögren’s is one of the symptoms of Celiac disease amongst a long list including:

• Fatigue

• Addison’s disease (hormonal disorder)
• Gastrointestinal distress (gas, bloating, diarrhea, constipation, vomiting, reflux)
• Headaches (including migraines)
• Infertility
• Mouth sores
• Weight loss/gain
• Inability to concentrate
• Moodiness/depression
• Amenorrhea/delayed menarche (menstrual cycles)
• Bone/joint/muscle pain
• Dental enamel hypoplasia (dental enamel defect)
• Short stature
• Seizures
• Tingling numbness in the legs.

Nutrition was the key to my healing process. By making the appropriate diet changes – (gluten and dairy free), I’ve managed to eliminate my migraines, IBS………etc., etc., meaning I reduced the inflammation in my body caused by gluten and dairy. I’ve also kept the Sjögren’s Syndrome under control. Even better, I have eliminated all medications and use food and natural remedies for nutrition and overall health.

I became a clinical nutritionist and started Karmic Health because I am so thrilled to be able to help others with my experience, education and passion in the field of nutrition and functional medicine. In the next issue I will get into the details of why it’s so important to understand gluten and how it has changed over the past 50 years; how it relates to many diseases. I’ll also explain wheat allergy verses intolerance and leaky gut; and of course the most extreme case – Celiac disease.

Sandi is the founder of Karmic Health; specializing in nutrition related to disease where a gluten and casein (dairy) free lifestyle is crucial. Sandi works with celiac disease, autism and all auto immune disorders. Sandi graduated from The Natural Healing Institute in Encinitas CA., with a degree in Clinical Nutrition and is continuing her studies in Clinical Herbology. She has hands on experience and a true understanding of many health issues and has dedicated her life in helping others reach their optimal health.

Sandi has created her own healthy snack Karmic Krunch which she sells on her site. Sandi shared this with me. “ Before I created Karmic Krunch I did my homework. I found most gluten free foods were not all that healthy. I wanted to make something taste like a treat but as a nutritionist I was focused on making it as healthy and nutrition dense as possible without preservatives and without compromising on taste or quality. I also took several food allergies into consideration: gluten, dairy, casein, soy, peanuts and sugar. I came up with Karmic Krunch and I believe I have the perfect formula!”

Please sign up on the right hand column of every page to receive  my blog posts so you never miss a great one, or check back every 2nd of the month for another story or informative information from nutritionist, Sandi Star, CCN.

www.karmic-health.com or contact Sandi Star at 760.685.3154

© Copyright Karmic Health 2010

Thank you Sandi!

Tina Turbin

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Monday, March 1st, 2010

Celiac Disease and Sjögren’s Syndrome

This is a new one for me. I am constantly learning but this I feel we all need to be aware of. With upwards of 4,000,000 Americans suffering from Sjögren’s syndrome, it is one of the most prevalent autoimmune disorders. Nine out of 10 patients are women. With that said, please read on:

Here are some of the connections between Celiac and Sjögren’s :

  • Celiac disease and Sjögren’s syndrome have an autoimmune background and a close association.
  • In one study, the prevalence of celiac disease amongst patients with Sjögren’s syndrome has been found to be in the range of 4.5% and 15%.
  • According to Patinen et al., the co-occurrence of celiac disease and Sjögren’s syndrome should be recognized because of its effects on dental and oral mucosal health. In their 1994 study, they suggested that a gluten-free diet treatment might alleviate autoimmune inflammation.
  • On the basis of these findings, Szodoray  recommends screening and follow-ups , and regular gastrointestinal care of Sjögren’s syndrome patients to help identify celiac disease cases as well as help to avoid severe malnutrition and intestinal malignancies.

The symptoms are dry eyes and dry mouth, Sjögren’s may also cause dysfunction of other organs such as the kidneys, gastrointestinal system, blood vessels, lungs, liver, pancreas, and the central nervous system. People can experience extreme fatigue and joint pain and have a higher risk of developing lymphoma.

About half of the time Sjögren’s syndrome occurs alone, and the other half it occurs in the presence of another autoimmune connective tissue disease.When Sjögren’s occurs alone, it is referred to as “Primary Sjögren’s.” When it occurs with another connective tissue disease, it is referred to as “Secondary Sjögren’s.” 

All instances of Sjögren’s syndrome are systemic, affecting the entire body. Symptoms may remain steady, worsen, or, uncommonly, go into remission.

Since symptoms of Sjögren’s syndrome mimic other conditions and diseases, Sjögren’s can often be overlooked or misdiagnosed. On average, it takes nearly seven years to receive a diagnosis of Sjögren’s syndrome. Wow, so similar Celiac disease!

Since the disease was first identified in 1933 by Dr. Henrik Sjögren, it has been proven to affect virtually every racial and ethnic group. General awareness about Sjögren’s syndrome is still lacking and increased professional awareness is needed to help expedite new diagnoses and treatment options. Again very similar to our Celiac disease needs in this country.

Please share your experiences with this autoimmune disease as wel as celiac, please.

Tina Turbin

 

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Tina Turbin

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Tina Turbin became extremely interested and involved in the subjects of gluten free, gluten sensitive and celiac disease a number of years ago as a result of...

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