Posts Tagged ‘gluten intolerance’

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Friday, August 27th, 2010

Gluten Intolerant, Gluten Sensitive & Celiac- Explained by Ron Hoggan, Ed. D.

The phrase “gluten intolerant” is a rather nebulous term which is why I try to avoid using it. I prefer to use ‘gluten sensitivity’. The sub-groups of gluten sensitivity are: gluten sensitive enteropathy (otherwise known as celiac disease); non-celiac gluten sensitivity; neuropathic gluten sensitivity, etc.

Gluten sensitivity is the term recommended by the world renowned celiac researcher, Dr. Michael N. Marsh. The terminology I advocate is congruent with Dr. Marsh’s assertions and it provides some clarity, as it often identifies specific sites of damage induced by gluten, distinguishes between some subgroups, and allows even the novice to
accurately interpret some discussions of these topics.

The varying opinions on another’s biopsies may have be driven by just how familiar or unfamiliar  physicians are with the Marsh system for categorizing intestinal damage, which was developed by the same Dr. Michael Marsh mentioned above. The Marsh system is gradually being adopted throughout most of the industrialized world, as older pathologists and gastroenterologists advance their understanding, and the younger ones usually learn about the Marsh system during their specialization training.

Of course, the terminology I recommend also makes it very clear that there are a number of types of gluten-induced damage to various body systems. Dr. Rodney Ford, on the other hand, has offered the term gluten syndrome’ to incorporate the various groups of gluten sensitivities into one group. I also subscribe to that choice of terminology. Careful word choices in this regard are, I think, critical to understanding the broader field of gluten sensitivity, and that celiac disease is just one sub-set of a rather large and growing continuum of illnesses that require a life-long gluten free diet.

Celiac disease has long been considered the most serious of this spectrum and  other gluten sensitivities were considered “lesser” ailments. However, Anderson et al recently published findings that suggest that non-celiac gluten sensitivity may more frequently lead to serious illness or death  than celiac disease (1). If confirmed by
further research, we may need to revise our opinions regarding where celiac disease falls on the gluten sensitive spectrum.

I hope my comments serve to clarify this issue for many.
Best Wishes,
Ron Hoggan, Ed. D.

co-author: Dangerous Grains ISBN: 978158333-129-3 www.dangerousgrains.com ,author: The Iron Edge: a complete guide for meeting your iron needs ISBN: 978-0-9736284-4-9 http://tiny.cc/ironedge , author: Smarten Up! ISBN: 978-0-9736284-3-2 www.smartenup.info

Source:

1. Anderson LA, McMillan SA, Watson RG, Monaghan P, Gavin AT, Fox C,
Murray LJ. Malignancy and mortality in a population-based cohort of
patients with coeliac disease or “gluten sensitivity”. World J
Gastroenterol. 2007 Jan 7;13(1):146-51.

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Sunday, August 22nd, 2010

Celiac Disease and Miss Indiana’s Mission

Jenna Drew holds the title Miss Indiana (PA) International 2010 and her platform is Celiac Disease Awareness. She works hard to make “Gluten Free” a common household term. My friend, Jenna gathers many gluten-free bloggers in her efforts to help – read this interview:

http://www.glutenfreebloggers.com/2010/05/07/blogger-spotlight-gluten-free-help/

Tina Turbin www.glutenfreehelp.info

 

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Saturday, August 14th, 2010

What on Earth is Celiac? by Diane Jacobs

 

Author Diane Jacobs is ensuring people become well-informed about “What on Earth is Celiac” through her eBook of the same name.

With a complete, downloadable reference guide containing informative chapters on the history of celiac disease (CD), children with CD, symptoms, and much more, anyone can have the fruits of Diane’s labor, research, and compilation.

It really is a handy guide for newly-diagnosed celiacs and a tool to share with anyone else, even simply as a reference in one’s arsenal of books and data to help one’s own family and friends understand the disease.

You may go to Diane’s site, www.celiacdiseaseinfo.org, to download this 50-page gem. You can also read about the many other wonderful things this oman is doing and her delicious country-style gluten-free cookbook.

Click here to read my enlightening interview with Diane Jacobs.

About Diane: Diane Jacobs was diagnosed in 2003 with celiac disease and has dedicated herself to sharing information about celiac disease and also about the benefits of eating and cooking wheat and gluten free. In 2005, Diane created her own website: http://www.celiacdiseaseinfo.org; in 2006 she self-published her first edition of her Ebook: What on Earth is a Celiac?; in 2008, her cookbook: Delicious! The Very Best of Gluten Free & Wheat Free Cooking, a Homestyle Recipe Collection for Celiacs and Wheat Sensitive Folks” was self-published both at the website and at Amazon.com: http://amzn.com/B002GQ2ZJU.

Then in 2010, she created her food blog: “Gluten Free Foodie Heaven”: http://www.glutenfreefoodieheaven.blogspot.com.

Diane speaks to community groups and organizations about celiac disease and about how to comfortably (and fabulously!) and survive as a person who either is required to or desires to eat gluten and wheat free.  She also makes appearances on TV programs cooking gluten free and has been featured in local newspaper articles as well.

Prescott, Arizona Courier article: March14th, 2010:
http://www.prescottaz.com/main.asp?SectionID=74&SubSectionID=111&TM=69298

Tina Turbin
www.GlutenFreeHelp.info

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Saturday, August 14th, 2010

Up Close and Personal with Public Speaker, Celiac and Author, Diane Jacobs

 

 

Please tell me how you became interested in the area of celiac disease.

I became interested in celiac disease because I became a statistic. Even my gastroenterologist seemed at a loss…calling my diagnosis of this disease “quite rare.”

Did you know anything about this auto-immune disease before you were diagnosed?

Absolutely nothing. It seemed hardly anyone had heard of it.

How long after being off of gluten did you feel a change?

Almost immediately my more severe gastro reactions stopped, however, I remained quite sensitive for several months to other common allergens such as dairy.

Do you have any other auto-immune diseases currently? Yes.

Do you feel they can be attributed to the years of misdiagnosing or not being diagnosed celiac, when in fact you were? Absolutely.

Is there anything you’d like to share with others about this point?

I know a lot of people who are “self-diagnosing”. They have gone off of all gluten, knowing that they DO feel better, however, not knowing for certain if they have a food allergy or are indeed someone with celiac disease. This really concerns me. This is not something to speculate about for several reasons. If you have celiac disease, others in your family probably have it too, and you need to know the facts.

Secondly, we know that celiac disease is commonly seen in conjunction with other autoimmune diseases. People need to have the facts about their health and know what their scenario truly is so that they can adjust their diet accordingly. If I had been more proactive about my health, I wouldn’t be challenged with the degree of autoimmune disease that I am. I have a friend who was diagnosed with celiac about 4 years ago and also has MS. She was not diligent about abstaining from gluten in her diet, and now she has a rare form of rectal cancer (more autoimmune disease!). Celiac can be primary/secondary to other autoimmune conditions.

You have a lovely site www.celaicdiseaseinfo.org. Can you tell us what this site offers to others, please?

My website provides a service for those who are diagnosed celiacs or those who are seeking diagnosis, informs and educates the public about celiac disease, offers my 160 page gluten free & wheat free cookbook, and a 50 page informational e-book download. My website also offers links to my “Gluten Free Foodie Heaven” recipe blog.

What is the mission you want to accomplish through your site?

Initially, in 2005 when I created my website, I was in earnest about folks finding more information about celiac disease. There wasn’t near the information available and “the buzz” in the media that there is currently and I am so thankful that that has changed! Over time, my passion has evolved into two things:

1) I would like to convey to people about what I mentioned earlier, and that is not to speculate about a diagnosis of celiac disease. It’s like holding a gun to your head. My life has undergone a complete 360 degree change since about six years ago…because I became even more ill following the CD diagnosis…and it truly was debilitating. Finally, within the past year or so, the docs figured out what else was going on.  If it hadn’t taken so long to diagnose my CD in the first place, I believe that I may not have developed the other autoimmune disease.

2) Secondly, I LOVE the creativity involved in adapting recipes to gluten free…and the challenge of arriving at wonderful gluten free recipe options that may be even tastier than their non-gluten free counterparts! So the website has been evolving more into a foodie direction with recipes, photos of food…and even more food!

You have some lovely recipes and incredibly impacting food images on your site. Thank you!

Are they all your own recipes?

The baked donuts recipe on my blog and in my cookbook were adapted gluten free from Family Circle magazine. Most everything else is my own creation; unless specified otherwise. However, my recipes are frequently “inspired” by another gluten-containing recipe that I find elsewhere to begin with.

Do you test these recipes on or with others before publishing them?

My Gluten Free Foodie Heaven blog works GREAT for that purpose! And I have had, from time to time, volunteers from all over the country testing various recipes.

How do you go about developing a new recipe?

The process will begin with an existing recipe that contains gluten that may strike me as having great potential and appeal . Then it gradually evolves into something much more appealing than the original, in most cases. It’s like a work of art…and I don’t stop until I am happy with it. Perhaps I need to be creating a special cake for a dinner, so I find a recipe that contains gluten that I like the basic characteristics of and can use as the springboard to further develop as my own.  I enjoy the magazines “Mary Jane’s Farm” and “Country Living” a great deal and find inspiration from many of their “country-influenced” recipes.

Can you share a little bit of “Diane’s Process” please? See above.

You have created a cookbook which took over 7 years of research and development. What makes this cookbook unique?

My niche seems to be the creativity involved in all of my recipes. Very few are ordinary, and at times, I probably need to “reign in” my gourmet side a bit! The other unique aspect of my cookbook is its “home style” cooking slant. Almost everything is made from scratch and many with a country flavor.

How can someone purchase your cookbook?

My cookbook is available either at my website: www.celiacdiseaseinfo.org or at AMAZON.com: http://amzn.com/B002GQ2ZJU

On your site you offer some incredibly helpful information through a downloadable eBook. Can you share a bit about the eBook please?

My ebook is like a beginning primer on celiac disease…from its history, symptoms, diagnosis, treatment, a reference guide to gluten free foods, a section on gluten free flours, alternative gluten free grains, hidden sources of gluten, a starter guide to eating gluten free, and a bonus of a week’s worth of recipes.

You also have a blog www.glutenfreefoodieheaven.blogspot.com. Can you please share what this blog offers and how it may be different than your site?

My blog is just a lot of fun! I love sharing my recipes in this venue with others and hearing what people have to say! I also enjoy shooting the photographs and improving my photographer’s “eye” as I build the blog.

I read you also give seminars! What are your seminars about and where can one sign up for one?

At this time, my seminars have been local to the North Arizona area. I attempt to convey to people the difference between a gluten allergy and celiac disease, but also want to assist people in how to affordably cook gluten free and wheat free for themselves or for their family. I have done gluten free cooking demos on a statewide TV program as well as some radio interviews.

Do you have any plans to offer online seminars or online cooking classes?

Not at this time, but I am currently scheduled to teach gluten free cooking classes at a local community college.

You carry the name “Gluten-Free Country Girl”. That is quite a title. Can you share with us how you acquired this name?

Honestly, it just FITS! I live in the country and love the country lifestyle, after residing in large cities most of my life. My husband and I built our passive solar home on 3 acres almost ten years ago. We have carved out a very enjoyable lifestyle in a lovely mile high community in the mountains of N. AZ. We are developing a small vineyard, orchard and a large garden, raising chickens, rabbits, and two lambs. We make a conscious effort to maintain control over what we eat and put into our bodies. Initially, this came out of necessity, in that I was ill and seemed to do better with more fresh, nutritious food. But now, when I develop a gluten free recipe, I am also passing on what I hope is the essence of the lifestyle that I love!

What makes Diane “shine” in her work in the gluten-free celiac world?

Hopefully, what I mentioned above! I sincerely hope that people enjoy my recipes and my heart for getting more helpful information out there.

If you could share one thing today, what is it you’d like to say?

Be diligent as your own health care advocate. No one can really do it for you. Listen to your intuition when you are searching for answers to your health questions. And be assertive when working with your health care practitioners!

Thank you Diane!

About Diane: Diane Jacobs was diagnosed in 2003 with celiac disease and has dedicated herself to sharing information about celiac disease and also about the benefits of eating and cooking wheat and gluten free. In 2005, Diane created her own website: http://www.celiacdiseaseinfo.org; in 2006 she self-published her first edition of her Ebook: What on Earth is a Celiac?; in 2008, her cookbook: Delicious! The Very Best of Gluten Free & Wheat Free Cooking, a Homestyle Recipe Collection for Celiacs and Wheat Sensitive Folks” was self-published both at the website and at Amazon.com: http://amzn.com/B002GQ2ZJU.

Then in 2010, she created her food blog: “Gluten Free Foodie Heaven”: http://www.glutenfreefoodieheaven.blogspot.com.

Diane speaks to community groups and organizations about celiac disease and about how to comfortably (and fabulously!) and survive as a person who either is required to or desires to eat gluten and wheat free.  She also makes appearances on TV programs cooking gluten free and has been featured in local newspaper articles as well.

Prescott, Arizona Courier article: March14th, 2010:
http://www.prescottaz.com/main.asp?SectionID=74&SubSectionID=111&TM=69298

Tina Turbin

www.GlutenFreeHelp.info

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Saturday, August 14th, 2010

Delicious! The Very Best of Gluten Free & Wheat Free Cooking, A Home Style Recipe Collection for Celiacs & Wheat Sensitive Folks by Diane B. Jacobs

 

Author Diane Jacobs has created a unique cookbook for celiacs and gluten-sensitive individuals. What makes this particular cookbook so extraordinary is Diane’s down-home country style and fresh ingredients, as if they just came from your garden or farm.

The recipes are truly unlike any other in this consistently one-of-a-kind gluten-free recipe book. We tried a variety of dishes from her cookbook, and one for one, they were delicious.

Using seasonal tomatoes to make a fresh, kid-friendly tomato pie had all-over sensory appeal. Then the “All American” Macaroni and Cheese—out-of-this-world. I have to mention the Johnny Cakes, too, adapted from a recipe published in a 1981 issue of Readers Digest—scrumptious.

Diane’s book is full of little anecdotes that introduce the delightful recipes to come. They seem to add an element of charm to each dish.

We just finished our last bite of the Pleasant Street Inn’s Apple Skillet Cake. Not a crumb left.

I highly recommend Diane’s fabulous book, Delicious! The Very Best of Gluten Free and Wheat Free Cooking.

You may purchase her book through Amazon or www.celiacdiseaseinfo.org.

Diane is also happy to share her eBook, which is 50 pages full of information—What on Earth Is Celiac?—also on her website.  Read my eBook review here.

I also had the pleasure of interviewing Diane. Click here to learn more about this wonderful woman.

About Diane: Diane Jacobs was diagnosed in 2003 with celiac disease and has dedicated herself to sharing information about celiac disease and also about the benefits of eating and cooking wheat and gluten free. In 2005, Diane created her own website: http://www.celiacdiseaseinfo.org; in 2006 she self-published her first edition of her Ebook: What on Earth is a Celiac?; in 2008, her cookbook: Delicious! The Very Best of Gluten Free & Wheat Free Cooking, a Homestyle Recipe Collection for Celiacs and Wheat Sensitive Folks” was self-published both at the website and at Amazon.com: http://amzn.com/B002GQ2ZJU.

Then in 2010, she created her food blog: “Gluten Free Foodie Heaven”: http://www.glutenfreefoodieheaven.blogspot.com.

Diane speaks to community groups and organizations about celiac disease and about how to comfortably (and fabulously!) and survive as a person who either is required to or desires to eat gluten and wheat free.  She also makes appearances on TV programs cooking gluten free and has been featured in local newspaper articles as well.

Prescott, Arizona Courier article: March14th, 2010:
http://www.prescottaz.com/main.asp?SectionID=74&SubSectionID=111&TM=69298

Tina Turbin

www.GlutenFreeHelp.info

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Tuesday, August 10th, 2010

Gluten Sensitivity Beyond the Intestinal Tract

This is a helpful PDF which may be a bit advanced for some but if you have a good grasp of a few medical terms- this is for you.

http://www.tuesdayminute.net/Gluten%20Sesitivity%20Beyond%20The%20Gut.pdf

Watch this video

 

Tina Turbin www.glutenfreehelp.info


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Monday, August 9th, 2010

Why it’s Important to Raise the Celiac Diagnosis Rate

     As more and more people are diagnosed with celiac disease or gluten intolerance, awareness for the disease will increase, leading to more and more proper diagnoses. It is estimated that only three out of every hundred sufferers of celiac disease has been correctly diagnosed. In addition to increased diagnoses, the availability of gluten-free foods will increase. Gluten-free cooking and gluten-free recipes are becoming more and more prevalent in the United States, leading to gluten-free substitutes for foods like pasta, soy sauce, flour, and breakfast cereals. In countries where celiac diagnosis is high, it is common for restaurants to serve gluten-free foods as well. For example, in Sydney, Australia, every single pizzeria serves gluten-free pizza. As diagnosis increases in the United States, there will be more celiac and gluten-free support by restaurants, as well.      

Tina Turbin

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Tuesday, August 3rd, 2010

Understand Celiac Disease & Gluten Sensitivity- VIDEO – Warren Medical Center- children and adults

This video discusses everything from diagnosis, impact on adults and children, and helpful diet tips.

First of all thank you to Prometheus Labs for their help in funding this video and Warren Medical Center for their expertise. This video will help us understand celiac disease and give you a heck of a lot of informative information in an easy to understand manner: ( Defn of a term:Prometheus is a specialty pharmaceutical company committed to improving the lives of patients.)

Experts from UCSD’s Celiac Center discuss everything from diagnosis, impact on adults and children, and helpful diet tips.

Experts in this incredible video include: Martin Kagnoff MD, Kimberly Newton MD, and Susan Algert PhD, RD.

Please enjoy and I welcome your feedback.

YouTube Preview Image

Tina Turbin

www.GlutenFreeHelp.info

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Wednesday, July 28th, 2010

Celiac Resource Guide by Julianne Karow

Author Julianne Karow’s husband was diagnosed with celiac disease, opening their eyes to a world unknown to them before the shocking day of the diagnosis. Walking out of the doctor’s office without guidance, living in a small town with no active celiac groups, Julianne was at a loss. She was the cook and grocery shopper in the family.

Her sleeves rolled up, she gained determination to satisfy her husband’s palate. Her awareness of the the world of gluten-free increased measurably. Along her journey to becoming educated about gluten-free, she realized the need for a resourceful book for the celiac community at large.

Julianne has done an incredibly good and thorough job of organizing all manner of gluten-free needs any celiac or gluten-intolerant individual will need. Some topics covered are: physicians, medications, online discussions forums, cookbooks, online grocery stores, and so much more.

Her details are well-researched and appear under item clearly listed. She leaves out nothing! One chapter I found most interesting was travel. She covers hotels and specific chefs, as well as yachts and celiac travel clubs. I was left with so many options and a desire to travel now, rather than the common travel regrets so many of us celiacs are left with.
Her chapter on food company links makes it extremely easy to do time-saving shop online. Not only did Julianne list out the company, address, link, phone number, and e-mail address, she concisely describes the company’s main products, saving a lot of Internet research.

Julianne went onto start a celiac support group and has co-hosted celiac and food allergy food expos. She has perfected the art of GF cooking, refers to many of her resources in her own book, and you can bet she’s satisfying her husband’s palate these days.

Julianne’s book, Celiac Resource Guide, is a wonderful addition to any celiac’s GF book resources, which we all seem to accumulate.    This resource book is HIGHLY recommended.
Tina Turbin

www.GlutenFreeHelp.info

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Sunday, July 25th, 2010

Kay’s Naturals Review

We tested a number of Kay’s Naturals cereals and Cracker and were quite impressed with the flavor and nutritional content. All the products have a high protein content with approximately ten grams of protein per 1 oz. This is very impressive.

Before getting too involved in testing such a variety of products, as I felt so many of these would great for kids, I needed to ensure the purity of the products. I had the opportunity to speak the owner and founder, Dr. Massoud Kazemzadeh (Dr. Kay), and I asked all my questions with the end result of being well-informed and at ease about pursuing the testing personally and with other celiacs.

The doctor informed that all his products test under 5 ppm, and his facility became 100% dedicated GF two years ago, as he concluded this was the best way to go since the company manufactures only gluten-free products.

Prior to that, a few of his products tested near 30 ppm and he was at a loss as to where this high count was coming from. He had every ingredient tested and all came in under the 5 ppm, except his source for almond flour. Since then, this has been resolved and he’s had standards set which are very well known. He assured me his soy isolate is the best, as its source is Solae, where they produce soy and nothing else.

With my mind at ease, I proceeded to test the products, and I was more than impressed with all I had at hand. The cinnamon toast pretzels taste like mini “cinnabons.” 1.5 oz. has only 9 g carbs, 10 g protein and 6 g sugar). Any child or adult would enjoy these as a quick pick-me-up snack.

They have a large assortment of crackers which are extremely impressive with names like Crispy Parmesan, Chili Nacho Cheese, and Lemon Herb, etc.

My testers felt their cheese chips were the perfect substitute for the long-gone Cheese Nips, which they can no longer eat, and I agree. Without a doubt, kids will enjoy these snacks of approximately 150 calories and 15 g of protein per bag—incredible!

The cereals are much like Cheerios, but better, and come in a variety of flavors and taste delicious alone or with fruit on top. We all agree that Kay’s Naturals (Dr. Kay) has a heartfelt story to share along and deserve our accolades for their products, taste, nutritional content, and well-packaged simple portion sizes.

Dr. Kay worked for years for several Fortune 500 Companies, developing new snacks and cereals for consumers. His wife Linda was a juvenile diabetic, and he was always concerned about the nutritional value of the products he developed—high-carb, low-calorie, and lacking fiber

He saw his wife’s suffering with her illness and saw the need for good products for the diabetic market. He shared his views with Linda and they agreed to start a company offering healthier options. They registered “Kay’s Naturals,” and he began creating prototypes. Unfortunately his wife passed away from complications with diabetes. Years later, Dr. Kay’s and Linda’s dream was rekindled, and he understood the dire need for healthier snacks and cereals and the need to help diabetics. Dr. Kay is remarried to attorney Ann Jones who eventually took over the company, pursuing the plan Dr. Kay and Linda created, and now Dr. Kay can devote time to product development. They currently offer 12 gluten-free and diabetic-friendly (low-carb and low-sugar) products, and he assures me he has no intention of quitting. He is proud to state that his products are now staple in diets addressing obesity, another concern he’s currently at the helm of.

This company, the food, and this incredible man, Dr. Massoud Kazemzadeh (Dr. Kay) are to be commended for exceptional products and purpose.

Tina Turbin

www.GlutenFreeHelp.info

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Tina Turbin

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Tina Turbin became extremely interested and involved in the subjects of gluten free, gluten sensitive and celiac disease a number of years ago as a result of...

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